Aidpage

Today was a very sad and hard day. We live out of state and far from them so had no way to attend. We lifted them up in prayer though all day and I know in my heart that darling little Conner Jones is in heaven right now. http://www.facebook.com/group.php?gid=309489892984 prayers please for this family who just lost their 7 yr old son to CF.
Services for him, a Celebration of Conner's life was today. I have posted where people can send a card and prayers for the family by sending them to thier church. If anyone would like to do that I know they'd be grateful.

This was a very hard day for us due to Nathan having cystic fibrosis and being so close in age to Conner. This was his little buddy that we've been praying about for months. I am thankful and also sad. Knowing them is a gift...I hate that they are having such horrible pain though and know there's so many here who've lost a child too. God bless them, and you as well.

Hi~ I had been on aidpage for several years but Nathan had alot going on, so I hadn't been active for a while. I am married and a stay and home mom of two boys. I have a 5 yr old and 16 yr old. Our 5 yr old Nathan has cystic fibrosis, G-tube, EE, asthma, GERD and an oral aversion. He's a little miracle. I am constantly looking for helful resources for our family. We have a web site for Nathan and hope that people will check it out and also begin to learn more about CF, or ways to help fight for cure for this horrible disease. God bless you. I also enjoy helping other's with various situaitons~curve balls life can throw into the mix. I have have been very blessed by this site, and found many helpful and life changing resources. I like to try to pass that kind of care and help on to other's, the same that we need for ourselves.

Good morning my name is David and I have cystic fibrosis as well as other major medical issues .. I also have other family member s in my home that are disabled as well with other issues .. Right now they are getting ready to turn off my power and I have no money to give them I understand that the bill is very high however I have tried for a few years to get help through the state and nothing has happend so right now I am stuck I do receve ssi and death benfits and work very part time however thats only when I am not in the hospital .. I do have to pay for co pays for my meds and other bills that I have as well I am asking anyone for help that may be able to help me I need help with water,power,gas and no were to turn I ask you if you know anyone to help me please call me or email me at cfkid@usiwireless.com my thoughts and prayers go out to all of you may god be with you

David  

ps you may also call me at 1-612-282-1211 

Hi, we are a military family and we are in desperate need of donations for anything.   We are behind in bills and need help.  Please consider helping us.  Our daughter has cystic fibrosis and we need to buy extra food so she has extra calories because she needs them in order to gain appropriate weight, so I need to make sure we have money in order to be able to do that.  Please help.

You or someone in your family has cystic fibrosis and needs help. Where do you start in your search for public assistance?

Call the Cystic Fibrosis Foundation at 800-FIGHT CF.

Click here find out more

Two good sources for learning about public assistance programs in your area are:

� Your local public social service agency
� United Way
� Social Insurance Programs

For information contact the local SSA office or call (800) 772-1213. (7am-7 pm EST)

Or contact by writing:

Social Security Administration
Office of Disability
Room 454, Altmeyer Building
6401 Security Boulevard
Baltimore, Maryland 21235

� Aid to Families With Dependent Children (AFDC), contact the local office of your state human services department.

� Food Stamps, administered by the Food and Nutrition Service of the U.S. Department of Agriculture, is usually handled by the state or local welfare department.

� Supplemental Food Program For Women, Infants and Children (WIC) , contact your state or local agency determines eligibility.

School Programs

� National School Lunch Program
� Child Care Food Program
� Special Milk Program For Children
� Summer Food Program For Children

Contact your public school district.

Other Programs

� Children With Special Health Needs (CSHN) and often called Children's Medical Services
Contact your state health department for information about this program.

� Higher Education and Adult Training for People with Handicaps (HEATH)
Contact the HEATH Resource Center at (800) 544-3284 or (202) 939-9320 for more information.

� State Children's Specialty Services
Contact your state office

Helpful Hints

Tax deductions: Medical expenses may be deductible if they exceed a specified percentage of the family's income and are itemized on the federal tax return. In addition, the costs of prescribed or supplemental food may also be deducted.

For eligibility requirements, refer to Section 213 of the Internal Revenue Code of 1986. Similar deductions may also be available from your state. Contact your local IRS office or your personal tax advisor for the tax law in your state.

When seeking financial assistance, it is usually better to first contact the local branch of the federal agencies. If you cannot obtain the information locally, you may want to call the Health Care Financing Administration (HCFA) at (410) 966-3000 or write:

Health Care Financing Administration
Inquiries Branch
6325 Security Boulevard
Baltimore, Maryland 21207

my daughter has earned her masters degree in architecture and is working as a jr. architect in los angeles.  she has three years before she is licensed.  due to cystic fibrosis she is struggling financially.  please help her reach her goal.  she has some talent to show the world and you could be the reason she gets there.

         Hey everyone, well so far I have recieved some help with great resources, links to some foundations that help people pay for some past due medical bills, and also was directed to a great networking/support resource for cystic fibrosis.

         I just wanted to encourage you to keep trying. Whatever it is that you are going through, nothing has gone unseen by the Lord, and He will always make a way for you, even if it seems there is no way.

        God bless you and I just wanted to encourage you not to give up. This world is full of caring and generous people. Money helps fix many situations I know (we need it too) but just remember that this world is temporary, and so is the situation you are in...even if it feels like it's been going on for years, and you haven't had a brake. Just keep praying and know that He is hearing your prayers. His timing it perfect, He is not slow or uncaring...and everything good in your life, truely that is good in your life, it is from the Lord. Don't forget that.

         If you ever are frusterated, and just want someone to pray with you, I am here.

         If you haven't checked out Nathan's web site yet, please take a minute and do that.  www.contrerashome.us Thank you very much, one of the biggest blessings you can ever do for us, if share our son's story /web site with other people....even if you can't donate personally. You never know who might see it!!God bless you.